About Me

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My name is Samantha, Sammy to many of my family, Sam to my friends. My blog describes the journey I have undertaken so far and the journey I continue to make having been diagnosed with Follicular Non-Hodgkin Lymphoma Stage 4 in December 2009. With the exception of surgery at point of diagnosis I have been actively monitored under a "watch and wait" approach and achieved 5 years without treatment and monitoring only last December. My prognosis is approximately 10 years but for every year we watched and waited I have felt positive that this would be extending that prognosis. I am very happily married to Roy and celebrated our 10th wedding anniversary last October and we have a beautiful 9-year old son Callum. My Step-Daughter, 20-year old Hayley who lived with us is now at University. Our house is awash with my beloved pets, our 2 Cavalier King Charles Spaniels, "Amber" and "Saffy", "Caboodle" the cat and "Elliott" the Rex rabbit. The opinions on this blog are my own and based on my personal experience.

Sunday 8 March 2015

This Is It.....It's Time Part 1

My usual Consultant was on holiday so I saw another member of the Team that he works with closely. This made me more anxious than I already was as I had become reliant on the continuity of a Specialist who I had become to trust, literally with my life.

My husband and I where called through. The usual greetings and pleasantries over with I was asked to lie on the consulting table for my usual physical examination. Everywhere was looking OK, but my groin; that was a different matter. The Consultant looked at me and confirmed the growth. We sat down.

My bloods where on the whole stable but my LDH has risen to 712; this was in line with the growth of the lymph node.

An urgent CT scan was arranged with a follow up appointment 1 week later.

2 days later I received a letter confirming an urgent appointment for a CT scan that Friday. For those that have never experienced a CT scan the type I had involved an iodine contrast. After booking in, a member of the X-Ray team explained that I needed to drink an 800ml fluid which contains iodine, over a 45 minute period. You are given a choice of blackcurrant, orange and lemon. None of them are particularly appealing so I reluctantly requested blackcurrant to which the lady sat opposite me then gave her feedback on this delicious drink by advising "the lemon is the best". Too late, but as this is the only flavour I have yet to try, I shall try to remember her advice for my next scan.

Having drank the fluid in 45 minutes as requested I was called in to change into a gown before being taken to a waiting area where I sat with a Radiographer to undertake all the paperwork. After I gave my consent to proceed a cannula was then inserted into my vein and flushed through with saline to ensure it was working. I was given a further moment to compose myself before being taken through to the scanner, and settled on the scanner table as best as I could be.

Once the scanner was set and my cannula was hooked up to the scanner the staff advised they would undertake a further saline flush and no sooner had they finished speaking I felt incredible pain in my arm. My vein had blown. From what I can understand a vein can blow due to too much usage and too big a cannula being fitted. This was no-one's fault and I suspect my vein was throwing a tantrum due to all the piercings it was getting through the various tests. Another Radiographer came through to explain when the vein blows the saline has no-where to go and therefore leaks under the skin, which causes the pain. She then proceeded to massage my arm to help release the saline from my skin and to reduce any probable bruising as a result, whilst the other Radiographer inserted a smaller cannula into my opposite arm which flushed successfully and we where ready to start the scan.

Again if you have never experienced a CT scan with iodine contrast, the iodine is flushed through intravenously as you move in to the scanner. It's a strange sensation where you are warned of as they begin, which I can only describe as a very warm sensation through the arm and body, which also makes you feel like you have pee'd yourself. Of course you haven't, it's just the sensation.

A few deep breaths, hold your breath, and reversed back through the scanner and the scan was complete.


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